We had the first appointment yesterday with Early Intervention. This was just a brief assessment to see if the concern is valid and if a full assessment is needed. Even before we got started she told me she was going to put in to have a full evaluation done due to family history and talking me she knew I my gut was worth something. But her evaluation confirmed it. So we will be having a full evaluation done on Skywalker in the coming weeks for a communication delay. I do not feel he has any other delays, but they will do a full evaluation to be sure nothing else is showing. I am grateful for that. Maybe if things had been handled this way with Marshmallow, we would have known about his autism 18 months sooner!! And looking at the evaluation forms, we would have!
So it begins all over again. And of course it is all in the midst of me feeling like there is not enough of me to go around. With no back-up and little support locally. I need a mommy break. I need a break. I have been burning the candle at both ends for months, even before hubby left. I somehow find the energy to get through each new day and keep trudging forward. But it is not without wear. I am grateful I have my concerns validated, but not thrilled to have more therapy and more to focus on in my already maxed out day. It will be nice to have C home again, but that will not be for many more months. So it is just me.
I have to chuckle Marshmallow is trying his prompts on Skywalker, so he will be a great little therapy helper. He told Skywalker he had to say "I want popcorn, please" in order for him to get the popcorn. I could not help but laugh. He gets it. Which is why that prompt is an expectation for Marshmallow. He knows it, and even is telling his brother how it works!! Thankfully, in this all it is something we already are doing and working on. I just want Skywalker to get the extra support he too deserves and needs. Also maybe learn a new way or two to help him with this delay, but for the most part. I got this. I know what we are doing. I have been doing, which is why I had concerns. Me doing therapy with him on my own is not making a difference. He is not desiring to mimic and communicate. But it will come. Just got to help him a long a little.
So my days will soon become that much more full. My days are never ending and seem to blur together. Skywalker is still keeping me up at night, waking several times a night for the most part. Every once in a while he only wakes once (like once a week, if I am lucky). Then my days look like this ::
Monday :: 7a - wake up // get dressed // breakfast // make snack for school // 745a - leave to drop Marshmallow off at school // home to feed, dress and change Skywalker // work on chores or run errands while only have one kid // 1045a - leave to pick up Marshmallow // 1130a - home for therapy with J // therapy with J & try to get a few things done in between working with Marshmallow // 4p - J leaves // 420p - get ready and leave for karate // 520p - head home // dinner // bath // bedtime by 8p // do things around the home // write C a letter // hope to get to bed before 11p // feedings with Skywalker usually every 2-3 hours all night long
Tuesday :: 7a - wake up // get dressed // breakfast // make snack for school // 745a - leave to drop Marshmallow off at school // home to feed, dress and change Skywalker // work on chores or run errands while only have one kid // 1045a - leave to pick up Marshmallow // 1115a - OT for Marshmallow // adventure, usually to the zoo or errands // 3p - speech therapy with Marshmallow // 4p - head home // 515p - arrive home // dinner // bedtime by 8p // do things around the home // write C a letter // hope to get to bed before 11p // feedings with Skywalker usually every 2-3 hours all night long
Wednesday :: 7a - wake up // get dressed // breakfast // make snack for school // 745a - leave to drop Marshmallow off at school // home to feed, dress and change Skywalker // work on chores or run errands while only have one kid // 1045a - leave to pick up Marshmallow // 1130a - home for therapy with J // therapy with J & try to get a few things done in between working with Marshmallow // 345p - J leaves // 345p - get ready and leave for karate // 5p - head home // dinner // bath // bedtime by 8p // do things around the home // write C a letter // hope to get to bed before 11p // feedings with Skywalker usually every 2-3 hours all night long
Thursday :: 7a - wake up // get dressed // breakfast // make snack for school // 745a - leave to drop Marshmallow off at school // home to feed, dress and change Skywalker // work on chores or run errands while only have one kid // 1045a - leave to pick up Marshmallow // 1130a - home for therapy with J // therapy with J & try to get a few things done in between working with Marshmallow // 4p - J leaves // a little time with the boys // dinner // bedtime by 8p // do things around the home // write C a letter // hope to get to bed before 11p // feedings with Skywalker usually every 2-3 hours all night long
Friday :: 7a - wake up // get dressed // breakfast // errands or doctor appointments or get things done // 1130a - home for therapy with J // therapy with J & try to get a few things done in between working with Marshmallow // a friend has been coming over to help so I get a few more things done and Marshmallow gets to work on social goals during therapy // 4p - J leaves // dinner // bath // bedtime by 8p // do things around the home // write C a letter // hope to get to bed before 11p // feedings with Skywalker usually every 2-3 hours all night long
Saturday :: 7a - wake up // get dressed // breakfast // 9a - karate // 10a - home from karate // get things done around the house if possible or get out of the house with the boys // work on a day of the home school curriculum // lunch in there somewhere //dinner by 6p // bath // bedtime by 8p // do things around the home // write C a letter // hope to get to bed before 11p // feedings with Skywalker usually every 2-3 hours all night long
Sunday :: 7a - wake up // get dressed // breakfast // 945a - leave for church // 12p - home from church // lunch // school lesson // play and get things done // dinner by 6p // bedtime by 8p // do things around the home // write C a letter // hope to get to bed before 11p // feedings with Skywalker usually every 2-3 hours all night long
This is the gist of my day, weekly. My days are full and never stopping. I am standing currently in the kitchen as I type this.
Oh and for the first time EVER since having my own phone plan I went over on my minutes. BY TWO HOURS! I used around 520 minutes this past month making phone calls to get things done. I never touch my not in plan minutes or whatever you want to call them. I use maybe 30 minutes a month. Pretty much all my calls are to our "friends and family 10" or they are verizon users. So want to know what I do in my spare time between tantrums/meltdowns, therapy, and loosing my mind. I am on the phone dealing with therapy, tricare, doctor offices, planning our trip to see C at the end of this month, the stupid MVD, calling the court for a jury duty notice. You name it I have dealt with it on the phone. And being put on hold forever!!
Yet, somehow I always find a way to get through each day and onto the next. My house is NOT clean. There are always dishes in the sink. I only shower about twice a week (cant believe I am admitting this). The kids are fed. The dog is fed. And we are all alive. That is about all I can handle right now. But I got this!
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